Empowering Women with Disabilities in Nepal: A Photovoice Journey
FAIRMED, in collaboration with the Swiss Disability and Development Consortium (SDDC), has been at the forefront of amplifying the voices of women with disabilities in Nepal through innovative participatory research methods. One such initiative is the Photovoice study, which enables participants to document their experiences and challenges through photography.
The consortium partners include CMB, Handicap International, Ida, and FAIRMED. While all these organizations work directly in the disability sector, FAIRMED’s primary focus is on Neglected Tropical Diseases (NTDs) such as leprosy and lymphatic filariasis, which can lead to lifelong disabilities. However, these disabilities are often broadly categorized under physical disabilities, failing to account for their distinct challenges and needs. Through this platform, FAIRMED has identified the critical gap in recognizing disease-induced disabilities and is committed to advocating for more precise classifications and greater awareness. This effort aims to ensure that individuals affected by these conditions receive the specialized support and recognition they deserve.
Phase One: "My Lens My Reality" Exhibition in Switzerland
The initial phase of this study culminated in the "My Lens My Reality" exhibition, showcased in Switzerland. This exhibition featured photographs taken by ten Nepali women with diverse disabilities, capturing the barriers and enablers to their social, economic, and political inclusion. The event provided a platform for these women to share their stories with an international audience, building greater understanding and advocacy for disability rights. Ms. Sahida Khatun participated in this phase from FAIRMED.
Phase Two: Addressing Climate Change Impacts
Building on the success and learnings from the first phase, the second phase of the Photovoice study focuses on "The Impact of Climate Change on Women with Disabilities in Nepal." This topic was selected through focused group discussions involving consortium partners, organizations of persons with disabilities (OPDs), and individuals with disabilities, ensuring it resonates deeply with the participants' lived experiences.
Sumitra Majhi's Participation
In this phase, FAIRMED nominated Ms. Sumitra Majhi from Sindhupalchowk, a woman with a disability, to participate. Sumitra's involvement is pivotal in showing the intersection of disability and climate change. During recent floods in Nepal, Sumitra faced significant challenges due to her disability, underscroing the disproportionate impact of climate-induced disasters on individuals like her.
Current Progress and Future Directions
The second phase commenced with an orientation workshop in Kathmandu, where participants were trained in photography techniques to document their experiences related to climate change. The initiative aims to culminate in a comprehensive study report and a compelling photo story of ten women with disabilities, showcasing their relationship with climate change.
FAIRMED remains dedicated to advocating for the rights and recognition of all individuals with disabilities, particularly those affected by diseases. Through initiatives like the Photovoice study, we strive to bring their stories to the forefront, influencing policy changes and building a more inclusive society.
